What is MODY?
MODY, or Maturity Onset Diabetes of the Young, refers to a group of rare inherited forms of diabetes. It is often misdiagnosed as Type 2 or Type 1. MODY patients usually produce some insulin and have normal insulin sensitivity, but may not produce enough insulin to cover meals. One fellow MODY described our disorder as having a “lazy pancreas”, which I find amusing but unfortunately accurate.
MODY can be officially diagnosed through genetic testing, but I personally have not undergone any of the genetic tests needed to pinpoint which of the six varieties of MODY I have. Genetic tests became available well after I was diagnosed through exclusion, and would not at this point change my course of treatment. Like most MODY diabetics, there is a strong presence of diabetes in my family tree. My mother’s two brothers, father and grandfather were all insulin-dependent diabetics, and she herself was diagnosed as Type 2 in her late 50s.
A brief overview of MODY:
Essential in-depth MODY reading: