What is MODY?
MODY, or Maturity Onset Diabetes of the Young, refers to a group of rare inherited forms of diabetes. It is often misdiagnosed as Type 2 or Type 1. MODY patients usually produce some insulin and have normal insulin sensitivity, but may not produce enough insulin to cover meals. One fellow MODY described our disorder as having a “lazy pancreas”, which I find amusing but unfortunately accurate.
MODY can be officially diagnosed through genetic testing, but I personally have not undergone any of the genetic tests needed to pinpoint which of the six varieties of MODY I have. Genetic tests became available well after I was diagnosed through exclusion, and would not at this point change my course of treatment. Like most MODY diabetics, there is a strong presence of diabetes in my family tree. My mother’s two brothers, father and grandfather were all insulin-dependent diabetics, and she herself was diagnosed as Type 2 in her late 50s.
A brief overview of MODY:
Essential in-depth MODY reading:
Additional reading:
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1.
Nikki Allen | April 19, 2007 at 4:12 pm
Hi there, just came across your blog, by doing a random MODY search on google. I’ve read a few of your entries and found them really interesting.
I’m a MODY 3 and have had very little contact with others with our weird type
I see you have recently started on insulin, i started using insulin in June 2006 after several years using oral meds.
If you would like to chat then feel free to email me, it would be nice to hear from you
take care
Nikki
2.
grtgmadeb | May 20, 2007 at 3:16 pm
I never heard of MODY and am wondering about it. Will do more research and learn. The disease is prominent in my family on one side (mother) my mother, her brothers, her mother and I suspect it goes farther back than that. Unfortunately my mother’s memory is so poor I may not be able to find any more. My sister was just recently diagnoised (she’s in her 40’s) and I worry about my daughters but can only warn them and try to be a good example, unlike my mother who does denial well but at 85 not likely to change.